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AnSWeR  > ConditionsKlinefelter's Syndrome > Cases > Tony > Interview Highlights 01



Interview with Tony 01
 
When did you find out you had Klinefelter's?
 

I found out I had Kleinefelters in 1992 when I was twenty-four / twenty-five. It was through an infertility test , that was the spark that caused the diagnosis if you like. In my previous marriage my wife already had two children so when we were trying for children and not getting anywhere I was the one that was tested and it was at that point I was told that I wasn't producing sperm. When I was told that I was infertile my marriage ended within six weeks. So that was one of the reasons that I sort of confided in Theresa my wife now. So she's been there all along and she's been very, very supportive.

 
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What were you like physically as a child?
  All images of Tony courtesy of the Wellcome Trust Medical Photographic Library

Physically I was always very small, poor bone structure, very weak, I was a weakling child, I didn't have any muscles, I didn't take part in sport. Really up until puberty that was the only way it manifested itself. It was knowing that I couldn't take part in any tumbling around that boys tend to do.

I suppose I was to some extent a sickly child, but how much of it was psychosomatic and school sickness I can't answer that.

 
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Did you have any problems at school?
 

All images of Tony courtesy of the Wellcome Trust Medical Photographic LibraryI was very, very shy. I wouldn't go anywhere on my own. I found it very difficult to make friends. I didn't have any real friends. I was about eight or nine before I could read and write. Just because I wasn't physically strong enough, you know, I didn't like to play football and I was --- it was an excuse for them to pick on me and children don't really need an excuse, so this made things a little bit more difficult. Again not being able to read and write didn't help because I couldn't read what was on the blackboard and sitting at the back of the classroom and all the other little things that at the time are quite small but put together mount up to a difficult school life.

 
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What happened in your teenage years?
  All images of Tony courtesy of the Wellcome Trust Medical Photographic Library

Puberty didn't really happen, I got a few hairs here and there, but the testosterone didn't kick in because I didn't have any to kick in. So that became a very, very hard period of my life because all your peers were developing and I wasn't and you start putting it off so at fourteen / fifteen when they started to get bigger and stronger, I wasn't - that didn't happen, so I became more of a loner. I started withdrawing into myself. And then as you get to, you know, seventeen / eighteen you start... your friends are shaving and you're not and you start asking others, you know, because you're generally mixing with say... when you're fifteen / sixteen you know people who are eighteen or nineteen, so you're asking them, 'how old were you when you started shaving?' - 'oh, I was seventeen', and you say, 'oh, okay I've got a couple more years yet', and then by the time you leave school you're mixing with work colleagues and, 'how old were you when you started shaving', 'oh, I was twenty', so you've got a couple more years yet, and you know, that was something that really deeply affected me and was one of the reasons that I needed to find out what was specifically wrong with me after I was told that I was infertile.

 
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questions Q1, Q2, Q3, Q4 | Q5, Q6, Q7, Q8 | Q9, Q10, Q11

Last update: 14 September, 2005 1:23 PM


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