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What are your physical problems? |
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Spina bifida. It's a curvature of the spine. I'm paralysed from the waist down and I've have also got hydrocephalus as well which is part of my condition. Hydrocephalus means that there's pressure on the brain. I've have got two shunts in my head which prevent me from getting headaches, severe headaches and if both blocked up there's a danger of me not recovering from them. I've had that many operations over the last twenty years. I've have had two put in, whereas before I only had one. The first one was put in when I was born and the second one was put in twenty odd years ago.
Interviewer: Do you have problems with incontinence as well?
Yes I do suffer from catheterisation. I wear pads twice a day. I've been doing self catheterisation for the last nineteen years. I've got used to that. |
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What is it like having to use a wheelchair all the time? |
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Other than going up and down kerbs I'm fine. Because I mean it's just the kerbs that I can't get down and other than that I'm fine.
Interviewer: So have you always have to have somebody with you then?
To get down a kerb, yes, because I'm frightened in case I fall out of my chair. It's hard. Very hard. I keep, I mean I've just been involved in a wedding, but I couldn't exactly do the things that my brothers were doing. The bride and groom, my niece and nephew, I couldn't exactly, take them out the car, put them in the car, whereas two of my brothers walked them to the car whereas I couldn't do that and I felt as though I did really bad. I have actually seen the video and I keep thinking 'I should have been doing that'. |
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How independant are you? |
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A lot more now than I used to be, a lot more. Because I can get myself around a lot more, via taxis, so I can get myself around places now.
Interviewer: Why couldn't you before?
Because I never thought about doing it. It's just since I've been to college it's taught me the way of getting myself out and everything. It was mainly the independence I went for when I was at college in the first place so that got my motivation, got me going again.
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questions Q1, Q2, Q3 Q4 | Q5, Q6, Q7, Q8, Q9 |
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