We have chosen a range of people affected by spina bifida to illustrate different issues which may arise for each individual and at different stages of life.
Click on the name or picture to hear the stories of each individual.
Personal Experiences
Jack is 18 months old and has spina bifida. He may need to use a wheelchair and lives at home with his Mum, Dad and older brother. Jack has just learned to walk quite well but gets tired really easily. Jack is a really happy and bright little boy and lets nothing stand in his way. Jack might need another operation on his legs.
Brandon is 8 years old and has spina bifida which was diagnosed in pregnancy by ultrasound scanning. He uses a wheelchair and has a shunt to treat hydrocephalus. He attends mainstream school, lives at home wiht his Mum, Dad older sister and cousin and enjoys quad-biking, cricket and football.
Koysor is 31 and has spina bifida. He uses a wheelchair and at present attends a residential college away from home.
Alison is in her late 30s and has spina bifida. She has been married for 15 years and has a 10 year old son. She uses a wheelchair to aid mobility and works as a middle manager for the civil service.