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AnSWeR  > ConditionsTurner's Syndrome > Cases > Imogen > Interview Highlights 01



Interview with Imogen 01
 
How old were you when you found out that you had Turner's syndrome?
 

All images appear courtesy of the Wellcome Trust Medical Photographic LibraryIt would be after I was 14, maybe even 15, because my parents waited until I started asking questions. I was diagnosed when I was roughly 2 years old at, gosh, the famous children's hospital in London, but in lots of ways I am very grateful for the fact that nothing was said until I started asking questions. I think it is quite difficult to know what the impact of knowing from an early age might have been.

We'd seen a lot of doctors and things when I was younger but it was never properly explained, fully explained, so I suppose the general sense of knowing something was up stemmed partly from that and obviously partly because puberty wasn't happening - you know it was sort of - why not?

 
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How do you think your parents felt about you having Turner's Syndrome?
 

All images appear courtesy of the Wellcome Trust Medical Photographic LibraryI think they have both had a lot of anxieties for me, but more my mum, because mums do worry don't they anyway, but I think they did their best to keep it less covert - as hidden as they could, and I got a terrific sense from my family background really that I could do anything I wanted, you know if I put my mind to it basically. I think Dad was particularly good at that, you know, it's just that without actually saying it. It's just knowing that the family had a belief in me, it's been a real strength. They must have kept a lot of worries to themselves I think - for the best of reasons.

 
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Did you take growth hormone?
 

All images appear courtesy of the Wellcome Trust Medical Photographic LibraryImogen: Well nobody ever suggested growth hormone. Not so far as I am aware anyway. Certainly not to me directly, and that might be because I am probably on the taller side for Turners. So that wasn't an issue, which I am quite glad about.

Interviewer: How tall are you?

Imogen: I am about 4'9". But I have actually shrunk a little because I'm 47 now.

 
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What about hormone replacement therapy?
 

All images appear courtesy of the Wellcome Trust Medical Photographic LibraryImogen: On the HRT I was led to understand that if I went on it too early it might mean that I didn't reach my full natural height so I actually delayed it and I didn't start taking it till I was 22. I had already met my husband.

Interviewer: So did you didn't develop secondary sexual characteristics before that? It didn't bother you obviously?

Imogen: Very little. I suppose the body shape was probably what they would call pre-pubescent really. Um, once I started the HRT things happened rather quickly. That's a funny sort of adjustment as well, I don't know whether to call it a difficult period. I think it was in some ways, and nobody else can do it for you or cope with it for you. You have got to do it yourself. I think holding on to your own identity which you have obviously developed because you have reached that age, before you go through those changes is not particularly easy.

 
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questions Q1, Q2, Q3, Q4 | Q5, Q6, Q7,Q8
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Last update: 13 October, 2005 1:23 PM


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