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AnSWeR  > ConditionsTurner's Syndrome > Cases > Imogen > Interview page1

Interview with Imogen 01

Age at interview: 47
Sex: Female
Background:
Imogen is 47 years old and has Turner's syndrome. She has been married for 24 years and works as a project administrator. She was diagnosed with TS at 2 years old and had Hormone Replacement Therapy in her teens.

The following is a transcript of the entire interview with Imogen.

image of Imogen

 
Can you describe who you live with and what you do for a job?
 

That's my husband of getting on for 24 years. I'm a Project Administrator for a childcare charity.

 
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Is that a full time job?
 

It is, yes. Full time, a little bit of everything. Reception, general secretarial stuff. You name it, it is part of the job description.

 
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When did you first find out that you had Turner's syndrome?
 

It would be after I was 14, maybe even 15, because my parents waited until I started asking questions. I was diagnosed when I was roughly 2 years old at the famous children's hospital in London, but in lots of ways I am very grateful for the fact that nothing was said until I started asking questions, I think I had known for probably at least 2 years before that that something was up. But that was it.

 
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Why were you grateful that you didn't know before?
 

I think there would be pros and cons about either approach obviously. I think basically because it let me have a childhood. I think it's quite difficult to know what the impact of knowing from an early age might have been. We'd seen a lot of doctors and things when I was younger but it was never properly explained, fully explained, so I suppose the general sense of knowing something was up stemmed partly from that and obviously partly because puberty wasn't happening, - it was sort of, why not?

 
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So what was your childhood like?
 

Very happy. We lived abroad. I was born abroad, and we lived abroad when I was the age 5 to 11 . My Dad travelled a lot. I've got one sister, older sister and I would say on the whole it was very stable despite all Dad's travelling and very happy.

 
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Did you have any particular problems when you were a child?
 

School was a bit different, - secondary school. I failed the 11+, so at that point I was sent to a private all girls school for the best of reasons - smaller classes; it was thought it would help, particularly as we knew I was hopeless at maths. But I had a pretty horrible three years of being bullied there until the girls who were doing it actually left for some reason. Then in the sixth form I went to a different school which was mixed gender and terrific, fantastic two years. Marvellous teachers. Brilliant headteacher. Total acceptance from my peers. I think it is a great launching pad for university.

 
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In that previous school, were you bullied because of your Turner's syndrome?
 

I think just because I was little. They threw me about because they could basically. And it only stopped when I slapped one of the girls who was doing it very hard across the face one day, which actually made me feel dreadful because I should have been able to stop them some other way. I think, looking back, I possibly made it worse because I showed absolute contempt for the people who were doing it and I don't think they liked that very much. But we weren't supervised properly at all, so play times, break, lunchtimes weren't much fun. I think I used to look like I'd been dragged through a hedge backwards sometimes.

 
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So when you were a little girl, I mean from 2-11 did you have a normal childhood?
 

Yes, because we were living abroad. My primary education was in one small private school, then a forces navy school for 3 years. I would say the two years in sixth form were the best.

 
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Last update: 13 October, 2005 4:53 PM


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