|
Links to further information After 16, what's new?
http://after16.org.uk/index.html
This web site is for people who have disabilities and have questions concerning life after school, it provides useful information with regards to money, benefits, transport, leisure, day time work and the law.
Antenatal Results and Choices
www.arc-uk.org
This website offers information and support for people considering pregnancy tests and termination decisions.
Association of Spina Bifida & Hydrocephalus (ASBAH)
http://www.asbah.org/
Provides advice and practical support for people with certain disabilities, their families and carers. ASBAH aims to improve services for people with spina bifida and or hydrocephalus, to extend their choices, maximise opportunities for independence and so help integration into the community.
Baby And Pregnancy
http://www.babyandpregnancy.co.uk/
BabyandPregnancy contains over 120 articles, all written by a team of experts.
BBC Disability website
www.bbc.co.uk/ouch
Regularly updated website with features and discussion about all aspects of disability.
British Council of Disabled People
www.bcodp.org.uk
Representative body of disabled people's organisations in the UK. Takes a radical view of disability.
Children with Spina Bifida. A Resource Page for Parents
http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx
Provides a list of useful links to medical resources and articles on Spina bifida, support groups, learning issues, surgeries and other useful information.
Contact A Family
www.cafamily.org.uk/index.html
Practical information on life with a disabled child, and contacts to support groups for different conditions.
Cystic Fibrosis Trust
http://www.cftrust.org.uk/index.jsp
Information on living with Cystic Fibrosis: treatment, therapy and nutrition information is provided as well as a wide range of links, articles and other support groups.
DipEx
www.dipex.org
A website which includes testimonies for patients affected by many different conditions, including women's experience of pregnancy services and testing in pregnancy.
Disability Now
www.disabilitynow.org.uk
National disability newspaper, published every fortnight by SCOPE.
Disability Rights Commission
www.drc-uk.org
Information on law and policy concerning disabled people in UK.
Down's Syndrome Association
http://www.downs-syndrome.org.uk
Aiming to provide information about the condition and on how to live a fulfilled and rewarding life. It also provides information, consoling and guidance for parents, families and professionals alike.
Genetics Interest Group
www.gig.org.uk
Network of genetic support organisations. Useful information about genetics services and genetics conditions. Some testimonies from people with genetic conditions.
Klinefelter Organisation
http://www.klinefelter.org.uk/
Provides general information about Klinefelter's Syndrome, medical links and contact for support and other interesting information about the condition.
Klinefelter Syndrome Association
www.ksa-uk.co.uk
Support group for Klinefelter's Syndrome, medical links and contact for support and other interesting information about the condition.
National Screening Committee
www.nsc.nhs.uk/uk_nsc/uk_nsc_ind.htm
The NHS agency responsible for guidelines and standards for health screening. Follow the links to the Antenatal Sub Group.
People With Cystic Fibrosis
www.Pwcf.net
A website that provides information about cystic fibrosis from the perspective of adults with cystic fibrosis.
Rare Chromosome Disorder Support Group
http://www.rarechromo.org
Unique, the Rare Chromosome Disorder Support Group exists to inform and support families and parents about other rare chromosome disorders.
Scottish Spina Bifida Association
http://ssba.org.uk/web/ssba.htm
Aims to provide public awareness and understanding of people with Spina Bifida and support for their parents, families and carers.
Turner's Syndrome UK
http://www.tss.org.uk
Information on Turner Syndrome, living with and treatment, life long guidance and support.
It also provides access to a series of documents related to the disease and testimonies of people with TS.
USOPO Society Directory
http://www.usopo.com/
A society links directory for ethnic groups, religions, issues, family, and more.
Tests Conditions Choices General Disability Ethics Links |
